Because COVID-19 is a still new illness, there’s no data yet about how ulcerative colitis might affect your risk. But there is information on things that do seem to put people at a higher risk of having a rougher time if you do get sick because of the new coronavirus.
Experts on this condition say all of the approved COVID-19 vaccines appear to be safe for those with ulcerative colitis and they recommend that you get the vaccine. They also have offered their best advice based on what they do know. COVID-19's effect on you and your treatment.
Who’s at Risk?
Although many millions of people have gotten COVID-19, most haven’t become extremely sick because of it. Older adults and those of any age who have other health conditions may be more likely to become severely ill with COVID-19. If you have ulcerative colitis, your risk may depend on many things, including your age, other health conditions you have, and what medicines you take.
Ulcerative colitis is a chronic inflammatory condition. The medicines your doctor has prescribed work to reduce inflammation by controlling the immune system. Some -- but not all -- of the drugs used to treat this condition suppress your immune system. This raises your risk of infection, whether that’s a run-of-the-mill cold or COVID-19. If the medicines you take do that, you may also be more likely to get severely ill if you do get sick.
How Can I Protect Myself?
Everyone should be following guidelines to protect themselves from getting COVID-19. If you have ulcerative colitis and take medicines that affect your immune system, you’ll want to be even more careful. For the most part, though, the basic steps you should take won’t look much different from what everyone should be doing now.
That includes doing these things:
- Wash your hands often with soap and water for at least 20 seconds.
- When soap and water aren't available, use hand sanitizer.
- Disinfect surfaces around you.
- Avoid touching your face.
- Avoid contact with people who are sick.
- Wear masks in crowded areas or health care facilities.
Should I Stop Taking My Medicine?
The short answer is, “No.” If you stop taking your medicine because you’re worried about your immune system, your symptoms may flare. Some medicines take months to leave your system anyway. So stopping them now wouldn’t change your risk of COVID-19 now. And you definitely don’t want to have to go to a hospital now because of a flare.
It may be a good idea to avoid steroids if you can. But you shouldn’t stop taking them suddenly. As a general rule, don’t change any of your medications without first talking to your doctor.
What if I Get Sick?
The main symptoms of COVID-19 are a fever, dry cough, and shortness of breath. It can also cause:
- Fatigue
- Chills
- Headache
- Muscle or body aches
- Loss of taste or smell
- Sore throat
- Congestion or runny nose
- Nausea or vomiting
- Diarrhea
- Belly pain
- Pinkeye
- Skin rash
If you notice a change in how you’re feeling, call your doctor.
Most importantly, if you think you might have COVID-19, isolate yourself from other people. Call your doctor or follow the advice where you live to learn what to do next and how long you’ll need to stay away for other people.
Free COVID testing is available in most communities. Some locations require an appointment while others are drive-up. Check with your local health department about testing availability.
Managing Your Stress
No doubt about it: This is a stressful time. And stress can trigger a flare-up. COVID-19 has added a new layer of stress and a wide range of concerns for everyone. Use these tips to help you handle it:
- Make a plan for your self-care, including how to handle a long time at home.
- Ask for support from friends and family -- online, if you can’t do this in person.
- Even while you are stuck at home, keep to a schedule.
- Ask your doctor for advice.
- Consider talking to a mental health professional.
- Find activities that help you relax, like meditation or a walk outside.
- Don’t watch or read the news too much. Stay informed, but don’t obsess.
- Find support from friends, family, and others.
